Jan Niles was diagnosed with melanoma as a young woman. In this interview she talks about her experience, how she obtained the support she needed. Jan talks about how she found out about, and enrolled in, a clinical trial. Jan also talks about risks and prevention of skin cancer and the importance of sun safety for people of all ages and nationalities.
Interview Questions
About Jan Niles
(Time:
0min
9sec
)
How did you first become aware of your cancer?
(Time:
0min
42sec
)
At what point did you decide to go see a doctor?
(Time:
0min
49sec
)
What information did you seek and how/where (journals, magazines, Internet)?
(Time:
1min
12sec
)
Did you decide to bring anyone along with you to see the physician?
(Time:
0min
39sec
)
What was your reaction when you heard the diagnosis?
(Time:
0min
46sec
)
What were your friends' reactions to the diagnosis?
(Time:
1min
1sec
)
What was your family's reaction to the diagnosis?
(Time:
0min
44sec
)
How do your religious or spiritual practices help you cope with your condition?
(Time:
0min
43sec
)
How do you deal with the stress of a melanoma diagnosis?
(Time:
2min
19sec
)
Did you obtain medical support for your anxiety/depression?
(Time:
0min
51sec
)
How do you handle the physical side-effects of cancer treatment?
(Time:
2min
17sec
)
Have you participated in any clinical trials?
(Time:
2min
21sec
)
Where did you find out about the trials?
(Time:
1min
13sec
)
How could the information on the trials be improved for patients?
(Time:
1min
46sec
)
Was the consent form straightforward and easy to understand?
(Time:
0min
58sec
)
Do you think people are afraid of clinical trials and associated risks?
(Time:
0min
58sec
)
How well did your physicians manage your pain?
(Time:
1min
23sec
)
At the time of your diagnosis, were you aware of the risk factors for melanoma?
(Time:
0min
21sec
)
What are some of the possible causes of skin cancer?
(Time:
3min
54sec
)
What precautions could people take to prevent skin cancer?
(Time:
3min
0sec
)
Did you try or think about using any alternative medicine?
(Time:
1min
17sec
)
How well did your physicians manage your pain?
(Time:
0min
55sec
)
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